NHS England is responsible for commissioning specialised services for people living with sickle cell disease (SCD), thalassaemia (which are known collectively as haemoglobinopathies), together with other rare anaemias. As numbers of people living with these conditions continue to rise, including those living in suburban areas, further from our larger hospitals, NHS England is looking at whether services are currently provided in the right way to ensure that wherever you live you can access the best possible care to enable equitable access to the highly specialised treatments that can be required.

The Sickle Cell Society has been working with NHS England to try to improve the services that you access, and we’d like to pass on your feedback! If you have any feelings about the services you receive in England, email to info@sicklecellsociety.org with the subject line NHS SERVICES CONSULTATION or join the NHS England Clinical Reference Group.