Statement on Dr Mischa Brozovic
Statement on Dr Mischa Brozovic The Sickle Cell Society were deeply saddened to hear of... Read More
Hallelujah Christmas Time (Christmas Single)
The B Positive Choir have released a fantastically festive Christmas single ‘Hallelujah Christmas Time’. B... Read More
Westminster Hall Debate
Treatment of Sickle Cell We were delighted that Rt Hon Pat McFadden MP (Chair of... Read More
Christmas Shopping
Christmas Shopping This Christmas, why not raise FREE donations to support our work when you... Read More
No One’s Listening – A Report
MPs call for urgent changes to sickle cell care after inquiry finds “serious failings” Report... Read More
Mid Term Strategy Update
In 2020 we issued a strategy describing how we would develop the Sickle Cell Society... Read More
Autumn Newsletter 2021
Autumn Newsletter 2021 In this Autumn edition of our newsletter, get an update on the... Read More
Statement on the Tragic Death of Sir David Amess
The APPG for Sickle Cell and Thalassaemia send our deepest condolences to the family of... Read More
First Sickle Cell Treatment in Over 20 Years
For the first time in over 20 years, a new treatment for sickle cell has... Read More
In Memory of Olivier Mmounda
The Sickle Cell Society were deeply saddened to hear of the recent passing away of... Read More
Join the Ascelus Service User Advisory Group
Ascelus Service User Advisory Group We are excited to be involved in the Ascelus research... Read More
Save Free Prescriptions (An Open Letter to the Secretary of State)
Sickle Cell Society signs a joint open letter to save free prescriptions for 60-65 year... Read More
Global Cure Sickle Cell Disease Virtual Conference
You are invited to attend a free Global Cure Sickle Cell Disease Virtual Conference on October... Read More
The Sickle Cell Society – ‘Emmanuel Amuta Poetry Award’
The Sickle Cell Society – ‘Emmanuel Amuta Poetry Award’ Are you a young person (between... Read More
Sickle Cell Society AGM 2021(Virtual)
About this event You are invited to the 42nd Annual General Meeting (AGM) of the... Read More
Future treatments for Sickle Cell Disease
Future Treatments for Sickle Cell On Thursday 2nd September 2021, the Sickle Cell Society and... Read More
Gideon’s Treasure London Fashion Week Charity Gala
Gideon’s Treasure London Fashion Week Charity Gala The Sickle Cell Society will be partnering with Gideon’s... Read More
How to Live with Sickle Cell: Sickle Cell and I
HOW TO LIVE WITH SICKE CELL: Sickle Cell and I The above is the title... Read More
Prescription Charge Petition
Add Sickle Cell to the Prescription Charge Exemption List Anusjka Regis-Etumnu has set up a... Read More
South London: We’re Listening
Affected by sickle cell in South London? We’re listening. In April 2021, Sickle Cell Society... Read More
Events | Fundraising | News
Run the London Marathon for Sickle Cell
Are you passionate about running? Have you ever participated in a marathon or half-marathon? Do... Read More
Monthly Parent Talk
Monthly Parent Talk Are you a parent with sickle cell or has a child with... Read More
Virtual Children’s Holiday
Every year for as long as we can remember we’ve run a multi-activity Children’s Holiday... Read More
Inquiry into Sickle Cell Care: Evidence Sessions
Inquiry into Sickle Cell Care: Evidence Sessions In May we launched a call for evidence... Read More
Miffy Sickle Cell Partnership
Miffy to partner with the Sickle Cell Society Miffy – the classic bunny character created... Read More
Exhibition: History and Memory of Sickle Cell Anaemia in Britain 1950 – 2020
Exhibition Launched on the History of Sickle Cell Anaemia in the UK at Black Cultural... Read More
Inquiry into Sickle Cell Care: A Call for Evidence
The deadline for the call for evidence has now passed. To find out more about... Read More
Updated Statement on the Preventable Death of Evan Nathan Smith
Updated Statement on the preventable death of Evan Nathan Smith Last month, we published a... Read More
Bola’s Story
Life-saving sickle cell treatment is highlighted in a new video sharing patient story. Life-saving sickle... Read More
Family Comedy Show
Do you or anyone you live with have sickle cell? Join us for a Family... Read More
SCS Statement on the Preventable Death of Evan Nathan Smith
Our thoughts are with the family of Evan Nathan Smith in light of the inquest... Read More
Protected: Our Favourite Brent
There is no excerpt because this is a protected post.
Vaccines: Your Questions Answered (Daily Mirror Article)
Vaccines: Your Questions Answered (Daily Mirror Article) Our NHS engagement lead, Iyamide Thomas, joined with... Read More
In Conversation with Professor Dame Elizabeth Anionwu
Talk on the Sickle Cell Society’s exhibition about the history of sickle cell disease in... Read More
Easter Workshops (3 Activities)
Easter Workshops Do you have sickle cell or live with anyone that has sickle cell?... Read More
UPDATE: LentiGlobin Clinical Trials Resumed
UPDATE: LentiGlobin Clinical Trials In September 2020 approval was granted to BluebirdBio to undertake trials... Read More
Open Letter Published by Sickle Cell Society and Charity Collaboration
The Sickle Cell Society joins charity collaboration to write open letter to encourage those with... Read More
‘Give Blood, Spread Love, England’ Receives Funding Boost
‘Give Blood, Spread Love, England’ receives funding boost to help tackle health inequalities and promote... Read More
Sickle Cell Society Joins Charity Collaboration to Boost Vaccine Drive
Sickle Cell Society Joins Charity Collaboration to Boost Vaccine Drive The Sickle Cell Society has... Read More
Rare Disease Day
Sickle Cell Society Joins Discussion with GBT about the Power of Rare Disease Day in... Read More
Dealing with Sickle Cell
🖤…#sicklecellawareness Dealing with sickle cell can be an extremely lonely and isolating experience. Sickle cell... Read More
Tell us Your Experience of how Newborn Screening Results for Sickle Cell and Thalassaemia were Communicated
Do you or someone you know have sickle cell or trait and have not yet... Read More
Digital Exhibition Launch
The Sickle Cell Society launch digital exhibition on the history of sickle cell in the... Read More
Launch of New Sickle Cell & Thalassaemia Publications
Launch of New Sickle Cell & Thalassaemia Publications The Sickle Cell Society as part of... Read More
Cast Aside and Forgotten – A Report
Cast Aside and Forgotten – A Report The All-Party Parliamentary Group for Sickle Cell and... Read More
Online Shopping
Online Shopping Buying online? Why not raise FREE donations to support our work with every... Read More
Transition to Motherhood for Women with Sickle Cell Disease – Research Study
Transition to Motherhood for Women with Sickle Cell Disease – a research Study by Sovereign... Read More
The Den of Giving – A Festive Performance
The Den of Giving – A Festive Performance Come and watch an exciting new performance... Read More
Online Content Survey
Help us improve our online content during the coronavirus pandemic with our Online Content Survey. The... Read More
New Sickle Cell Medicine Licensed in Europe
The European Commission has granted a new sickle cell drug authorisation for use in Europe... Read More
Black Women Employment and Sickle Cell Disorder – Research Study
Black Women Employment and Sickle Cell Disorder – a Reasearch Study by Myrle Blaine (Derby University)... Read More
Blood Donors Save My Life
Mum of one of the youngest sickle cell patients to rely on donated blood makes... Read More
Winners – Emmanuel Amuta Poetry Award
The Emmanuel Amuta Poetry Award is a creative competition for young people (between ages 10 -15... Read More
SCS letter to Boris Johnson on Public Health England Restructure
Letter to Boris Johnson urges the Prime Minister to not lose smaller charity partnerships in... Read More
Sickle Cell Society AGM 2020 (Virtual)
The Sickle Cell Society’s 41st Annual General Meeting (2020) About this Event The 41st Annual... Read More
Oral Sickle Cell Treatment Approved in Scotland
Oral Sickle Cell Treatment Approved in Scotland The Scottish Medicines Consortium (SMC) has made the... Read More
World Sickle Cell Day Poster 2020
For World Sickle Cell Day 2020 we encouraged people to wear red to raise awareness... Read More
Sickle Cell, Blood Donation and Me
Join Sickle Cell Society for this interactive workshop on sickle cell disorders, blood donation and... Read More
SCS Chief Executive, John James OBE, appears in Leaders Council podcast alongside Lord Blunkett.
The Sickle Cell Society’s Chief Executive, John James OBE, appears in Leaders Council podcast alongside... Read More
Voices of Pain
Voices of Pain is a multi-track montage of individuals’ reports living with or affected by sickle cell.... Read More
The Impact of Living with Sickle Cell Disease in the UK
The Impact of Living with Sickle Cell Disease in the UK The Sickle Cell World... Read More
Nutrition in Sickle Cell Disease
Nutrition in Sickle Cell Disease: a call to action to improve the health and wellbeing... Read More
Sickle Cell Disease and its West African Discovery
Sickle Cell Disease and its West African Discovery: a free webinar to raise awareness of... Read More
A ‘Local Hero’
June is ‘heritage Month’ in the London Borough of Newham and they have launched an... Read More
Calling All Sickle Cell Parent Carers and Health Professionals
Join one of our online events this July, showcasing the findings to date of the... Read More
Sickle Cell and COVID-19 Survey
The experiences of those living with sickle cell or caring for someone in the COVID-19... Read More
Global’s Make Some Noise raises over £40K for Sickle Cell Children’s Activities Programme
The Sickle Cell Society is excited to announce that Global’s Make Some Noise has raised £44,385 for... Read More
Sickle Cell at Home
Sickle Cell at Home A series of weekly challenges for you to get involved with,... Read More
Business As Usual – Office Closure & Working from Home
Business As Usual – Office Closure & Working from Home Over the last year, staff... Read More
Nutrition in Sickle Cell Research Project
Nutrition in Sickle Cell Research Project a Anglia Ruskin University research project. Please note that... Read More
Haemoglobinopathies Coordinating Centres (HCCs)
As you may remember as part of the Sickle Cell Service Review (Haemoglobinopathy Service Review)... Read More
My Sickle and I (an event for men with sickle cell)
My Sickle and I (an event for men with sickle cell) The Sickle Cell Society... Read More
I Am Number 17
1 in 17 people in the UK will be affected by a rare disease*. The... Read More
Children’s Holiday 2020
Children’s Holiday 2020 The Sickle Cell Society is excited to announce that applications are now... Read More
Love is in the Air – Charity Abseiling Event
Love is in the Air – Charity Abseiling Event on Valentine’s Day Friday 14 February... Read More
New Year’s Honours given to SCS Patrons and Medical Adviser
A massive congratulations to our patrons who received honours from the Queen on New Year’s... Read More
The ‘Help Us Help You’ Campaign Returns
‘Help Us Help You’ campaign returns to support the public over the winter months This... Read More
Global Survey Uncovers Under-Reported Effects of Sickle Cell (SWAY Results)
Findings from more than 2,000 respondents in 16 countries underscore the debilitating and under-reported effects... Read More
Sickle Cell: A Man’s Perspective
A Man’s Perspective: A night of insightful, educational and enlightening discussions about issues surrounding sickle... Read More
