SOS 40 Day Challenge
ARE YOU TAKING PART IN THE SELF OVER SICKLE 40 DAY CHALLENGE? In celebration of... Read More
Dame Elizabeth wins Pride of Britain Award
Sickle Cell Society patron wins Pride of Britain Award One of the Sickle Cell Society’s... Read More
Exhibition: The Colour of Pain
Imperial College London’s Centre for Languages, Culture and Communication present a multi-media exhibition with works... Read More
Mayor of Brent Donates Blood
40,000 black blood donors needed to help save lives The Mayor of Brent, Councillor Ernest... Read More
South London Link
In 2016 the Sickle Cell Society received funding from the Big Lottery fund to launch... Read More
Molade – Sickle Cell Partnership
The Sickle Cell Society is excited to be partnering with Molade. Molade, short for Omolade... Read More
Is Your Baby a Carrier of Sickle Cell? We Need You!
The Sickle Cell Society is on the Steering Committee of a research study being conducted... Read More
Blood Donation and Sickle Cell [BBC Radio 4]
Lindsay Johns asks why so few black Britons give blood and examines why it matters.... Read More
Sickle cell anaemia patients denied benefits due to ‘invisible’ illness, MPs warn [Sky News]
Thousands of people with the genetic blood disorder sickle cell anaemia are being declined vital... Read More
Hackney and City Mentoring Programme
As most of you will know, the Sickle Cell Peer Mentoring Programme has been successful... Read More
End the Blood Tax – A Report
Sickle Cell Society releases new report into the impact of prescription charges for those living... Read More
Parent Consultation Workshop
Invitation to attend a forthcoming consultation workshop Can you attend a workshop? The Sickle Cell... Read More
40 Portraits of Pain
40 Portraits of Pain By June Okochi I love telling stories. I write about my... Read More
Charity Raffle
Win 2 Tickets to King Hedley II with a meet and great with Lenny Henry... Read More
Sickle Cell Society Announced as one of the Mayor of Brent’s Charities of the Year
On Wednesday 1st May, newly elected Brent Mayor, Cllr Ernest Ezeajughi, announced his two charities... Read More
Global Make Some Noise
We’re delighted to announce that the Sickle Cell Society have been selected as a Global’s Make... Read More
Prescription Charges (APPG)
Have you been adversely affected by the financial burden of prescription charges? How does this... Read More
Sickle Cell and the Social Sciences
Professor Simon Dyson (De Montfort University) has recently published a new book which brings... Read More
40th Anniversary Gala Ball
40th Anniversary Gala Ball Sickle Cell Society celebrates 40 Years with Gala Ball The Sickle... Read More
Mentoring Programme published on British Journal of Haematology
Sickle Cell Society mentors, June Okochi and Whitney Joseph along with chief executive, John James OBE, have... Read More
Skibadee’s Sickle Cell Auction
Award winning musician, MC Skibadee is auctioning off two unique outfits from his latest music... Read More
Patient and Public Voice (PPV) partners wanted
NHS England are recruiting Patient and Public Voice (PPV) partners to be part of NHS... Read More
Brent SC&T Centre’s 40th Anniversary
The Brent Sickle Cell and Thalassaemia Centre is celebrating its 40th Anniversary this year. As... Read More
Public Health England – Job Vacancy
Public Health England – Job Vacancy: National Programme Manager – Sickle Cell and Thalassaemia Public... Read More
Tayo Oladapo Memorial Service
It’s three years now since we had the shock of the late Councillor Tayo Oladapo’s... Read More
It’s Valentine’s! Are You My Type?
This article written by Iyamide Thomas (NHS Engagement Lead) for Valentine’s Day five years ago... Read More
The Societies are engaged again!
By Iyamide Thomas, NHS Engagement Lead, Sickle Cell Society The Good News If you are... Read More
‘Help Us, Help You’ – A New NHS Campaign
NEW NHS ‘HELP US, HELP YOU’ CAMPAIGN SUPPORTS THE PUBLIC TO STAY WELL OVER THE... Read More
Sickle Cell Society Chief Executive, John James, Receives OBE
John James, Chief Executive of the UK’s only national sickle cell charity, has been awarded... Read More
Lucreta LaPierre, Friend of the Society, Sadly Passes Away
Everyone at the Sickle Cell Society was deeply saddened to hear of the passing away... Read More
I’m In Crisis – A Report
New Report Published on the Lack of Representation that Sickle Cell Disease and Thalassaemia has... Read More
Prescription Payment Petition
A new petition has been launched to “Provide prescription payment exemption for people with Sickle... Read More
Warmer Homes Programme
If you’re a London homeowner on benefits you may be eligible for a free boiler,... Read More
New Sickle Cell Trait Study in USA
Genomics of Exertion Related Events in Sickle Cell Trait The Consortium for Health and Military... Read More
Simonne Kerr, friend of the Society, tragically killed
[Image: Jenica Leah (Children’s Author), Dawn Butler MP, Simonne Kerr, Professor Dame Elizabeth Anionwu, John... Read More
Annual Academy for Sickle Cell and Thalassaemia Conference
ABOUT This Academy for Sickle Cell and Thalassaemia annual conference is one of the leading... Read More
“How Did You Contract That?” – A Report
The Sickle Cell and Thalassaemia All-Party Parliamentary Group (SCTAPPG) Report into the institutional failures of... Read More
Sickle Cell Service Review
Over the past three months the Sickle Cell Society has been gathering feedback from patients,... Read More
Sickle Cell Society Chief Executive is awarded an OBE in the Queen’s Birthday Honours
John James, Chief Executive of the UK’s only national sickle cell charity, has been awarded... Read More
2018 Winner: GSK IMPACT Awards
The Sickle Cell Society has won a national award for excellence! We have beaten more... Read More
Standards for the Clinical Care of Adults with Sickle Cell Disease in the UK – 2018
The Sickle Cell Society in partnership with the UK Forum on Haemoglobin Disorders are proud... Read More
Tell your story
Tell Your Story: Joint oral history project on sickle cell with UCL and the Wellcome... Read More
2018 Winner: GSK IMPACT Awards
The Sickle Cell Society has won a national award for excellence! We have beaten more... Read More
Antenatal Screening Conference
YOU ARE INVITED! Parents’ Stories and Service Evaluation in sickle cell and thalassaemia screening – a... Read More
Fundraising Event: Frenemy
Our dedicated fundraiser, Lucreta, will be at the Catford performances raising money for the Society, so... Read More
It’s Valentine’s Day! Do You know Your Type?
It’s Valentine’s! Do You know Your Type? Valentine’s Day is upon us! Did you know... Read More
Dr Adebayo Olujohungbe Award
The Dr. Adebayo Olujohungbe Award Do you know a health professional (e.g. occupational therapist, psychologist, nurse, doctor,... Read More
Notting Hill Carnival Splash
Notting Hill Carnival Splash by Carmen Drioch “It was my idea to organise and raise... Read More
Top Tips for Young Men
To get involved with the mentoring programme email: mentors@sicklecellsociety.org
AliyasthoughtsSCD: Like a prisoner in your own body
Sickle cell can sometimes make you feel like a prisoner in your own body. Often... Read More
Terrific Teens
The Sickle Cell Society recently collaborated with Patient Voices and recruited participants to a residential... Read More
All Personal Independent Claims to be Reviewed
In March 2017 the government changed the PIP rules to make it harder for people... Read More
#LivingMyBestSickleLife – Don’t panic! Plan.
(You can listen to the audio version of this blog here) Recorded by Relax Like... Read More
Live Your Best Life
Hello again! I hope you are all doing well and enjoyed the recent holiday season... Read More
BDB meets Tropical Sun Foods and Mavis Amankwah
On Thursday 2nd November 2017, I was asked to present the Breaking Down Barriers (BDB) Project... Read More
£100,000 for new National Lottery funded research led by disabled people living with sickle cell disorder
De Montfort University (DMU) in Leicester has been awarded nearly £100,000 as part of a... Read More
BDB Meets Action West London
New year, new you? – Why not? The new year is the time to set... Read More
NHS England Webinars
NHS England is responsible for planning and buying specialised services for people living with sickle... Read More
BDB meets The Benefits Training Co.
On the 29th November 2017 BDB met The Benefits Training Co. for a training on Universal... Read More
NHS Sickle Cell and Thalassaemia (SCT) Screening Programme
The NHS Sickle Cell and Thalassaemia (SCT) Screening Programme screens pregnant women to find out if they... Read More
Blood Donation Rules Have Changed
On 28th November the rules for blood donation in England changed. The government announced the... Read More
BDB meets Help Your Health
This week I attended Help Your Health ❤ ‘Health Champion’ hosted by the lovely Clare Fay from Ealing... Read More
No More Meat? Stepping into Plant Based Living
Hey lovely people! I’ve been wanting to blog for a long while now, but for... Read More
Events | Fundraising | News
Medicine and Me Patient Education Day (Videos)
In September we joined with the Royal Society of Medicine to run a patient education... Read More
The Dr Adebayo Olujohungbe Award
The Dr. Adebayo Olujohungbe Award Do you know a health professional (e.g. occupational therapist, psychologist, nurse, doctor,... Read More
Children’s Activities: November
Up coming activities: Sat 11th Nov – Planetarium (SE10) Sat 18th Nov – London Eye... Read More
Refer a Young Person for Mentoring
To refer a young person email: mentors@sicklecellsociety.org Or call: 07377170152
Free Mentoring
To book your first session email: mentors@sicklecellsociety.org Or call: 07377170152
Breaking Down Barriers
The Sickle Cell Society has partnered with the Breaking Down Barriers funded by the Sylvia... Read More
A Tribute to Emmanuel Christian Amuta
Tribute to Emmanuel Christian Amuta (29 August 2003 – 19 September 2017) (By Iyamide Thomas... Read More
Participate in the University of Sheffield Research
My name is Ore-Ofe Oladiran and I am a PhD student at the University of... Read More
Meet the Mentors: June Okochi – Lead Mentor
June was diagnosed with sickle cell before the age of 1 with the SS genotype.... Read More
Mentoring Scheme for Hackney and City
We are running a new mentoring scheme for 10 to 24 year olds in Hackney and... Read More
Medicine and Me: Living with sickle cell disorder
The Royal Society of Medicine and the Sickle Cell Society UK would like to invite... Read More
NICE Clinical Guidelines: Sickle Cell
Are you happy with the treatment you receive when admitted to hospital? The Sickle Cell... Read More
