NHS England Haemoglobinopathies
NHS England is responsible for commissioning specialised services for people living with sickle cell disease... Read More
“At Last”: Jojo Philips sings at the Annual Service of Thanksgiving
Singer Jojo Philips sang “At Last” at the Sickle Cell Society 2017 Annual Service of... Read More
What does the new Fundraising Preference Service mean for you?
This week saw the launch of the new Fundraising Preference Service, a new service which protects you... Read More
Watch: Hope for Sickle Cell
Tinu lives with sickle cell disorder. She and her doctor, Dr Paul Telfer talk about... Read More
Look after your health and stick with your treatment
Attending your doctors’ appointments and making sure you adhere to your treatment keeps you healthy.... Read More
Prescription charges set to rise again
Prescription charges are once again rising this April, to £8.60 an item. People living with... Read More
Apply for the Children’s Holiday
Our 2017 Children’s Holiday will be taking place in August. If you’d like your child... Read More
Dr Adebayo Olujohungbe Award for Excellence in Sickle Cell Adult Care
The Sickle Cell Society recognises the importance of multidisciplinary teams in treating and caring for... Read More
Sickle Cell Society Holiday Period Office Closure
During the festive period, the Sickle Cell Society will be closed on the following dates: Monday 26th... Read More
Tribute to Comfort Ndive
(By Iyamide Thomas, NHS Engagement Lead, Sickle Cell Society) ‘L-R: Iyamide and Comfort at the... Read More
It’s getting cold… how can you stay warm?
Winter can be a tough time if you live with sickle cell. Being cold can... Read More
Rest in peace, Comfort Ndive
We are sad to inform you that Comfort Ndive has passed away on 27 October... Read More
Give a little extra to the Society… for free!
Donating through Gift Aid means charities can claim an extra 25p for every £1 you... Read More
Watch: 12 year old Emmanuel recites his poem about sickle cell
12 year old Emmanuel recites his inspiring poem about living with sickle cellat the Sickle Cell... Read More
Donate to the BBC Radio 4 appeal
Did you listen to today’s BBC Radio 4 Charity Appeal? Welcome to the Sickle Cell... Read More
Automated Red Blood Cell Exchange: NICE recommends new sickle cell treatment device that could save the NHS millions
Automated Red Blood Cell Exchange: NICE recommends new sickle cell treatment device that could save... Read More
Travel costs for Specialist Sickle Cell Treatment
Some sickle cell patients face frequent travel for treatment. We are aware, for example, that... Read More
Merry Christmas from all at the Sickle Cell Society
Merry Christmas and a Happy New Year from all at the Sickle Cell Society! We’ve... Read More
Take advantage of Brent’s community sickle cell service
Brent’s first ever community sickle cell service is up and running for local people with... Read More
I.W.Y.S: Community Music and Radio Project
IWYS (It’s What You Say) is a community music and radio project founded by Creative... Read More
The Sickle Cell Society website survey
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SCS Offices closed on Thursday 3rd November
On Thursday 3rd November, Sickle Cell Society offices in Brent and Lambeth will be closed.... Read More
What do you think about gene editing technologies?
New genome-editing technologies, such as CRISPR, allow scientists to make very precise, permanent changes to... Read More
The 2015 Children’s Holiday: another spectacular year!
Donate to the 2016 Children’s Holiday By Comfort Ndive Another spectacular year for the annual... Read More
Hydroxyurea treatment is transforming the lives of children with sickle cell disease in the Liverpool area.
This is a guest article from Dr Russell Keenan, Consultant Paediatric Haematologist and Lead for... Read More
Pain meds and sickle cell: sickle cell patients are not addicts!
There’s a dangerous myth that people living with sickle cell are drug seekers and only... Read More
Dr Neville Clare – Pioneer Sickle Cell Advocate Passes Away
The Sickle Cell Society was saddened to hear of the passing of Dr Neville Clare... Read More
SCD Clinical Trial – Click to see if you are eligible!
A clinical research study is currently evaluating a new treatment for children and teens with... Read More
Heated swimming sessions for kids with sickle cell
Shantel Brand wishes her 5 year old son could take part in swimming activities with... Read More
A letter to Universal Studios regarding Ted 2
The following is the text of a letter sent to Larry Kurzweil, president of Universal... Read More
Self managing sickle cell: a SCS patient education day
Dr Colette Reid’s slides: Understanding your pain medicines
Action request: Is your child’s school using best practice for sickle cell?
Professor Simon Dyson has authored a guide so that teachers will be better able to... Read More
Supporting Young People with Sickle Cell at School: A Guide
Sickle Cell and Thalassaemia: A guide to school policy [pdf] A new law (Section 100 of... Read More
Give blood this Christmas
This Christmas, it’s really important that blood stocks are high and blood is needed from... Read More
Turn their sickles into smiles!
Each year, we take children with sickle cell on holiday. The Sickle Cell Society provides a one... Read More
Sickle Cell Society Annual Children’s Holiday 2014
Announcement! We’re currently fundraising so we can have a children’s holiday in 2015. Please click here... Read More
What makes a new medicine valuable to you – a survey
The project explores how people affected by genetic or rare conditions, such as sickle cell... Read More
