Real Lives Blog

So, this year has been an incredible year full of happiness, blessings and new ventures.... Read More

When you’re in sickle cell crisis it takes the life out of you literally as... Read More

IT IS TIME TO LISTEN, IT IS TIME TO BE HEARD This must be one... Read More

Stop policing our bodies! Having sickle cell means everything you do is weighed up, judged,... Read More

2021 And We Still Cry: In memory of Evan Smith & Richard Okorogheye A Real Lives... Read More

When I was severely depressed it was like living on autopilot. During my constant hospital... Read More

When you have sickle cell it becomes extremely easy for doctors and nurses to accuse... Read More

When you go into sickle cell crisis it can mean a lot of trips to... Read More

So I have now been back at work for 5 weeks, it has been good... Read More

Nobody could have visualised what the year 2020 would be like. I for one was... Read More

When I was a child sickle cell didn’t really affect my life. I would rarely... Read More

This is a special blog for my mother and for all the mothers who are... Read More

To mark #SickleCellAwarenessMonth brave 9 year old Darien Russell-Jones who attends Central Middlesex Hospital at London... Read More

Sometimes you can’t help but think about you’re future or lack there of. As I’ve... Read More

Sickle Cell & Lockdown Well, where do I begin as so much has happened since... Read More

Hydroxyurea and exchange blood transfusions are the only options in treating sickle cell. Throughout many... Read More

When you have sickle cell you can become severely anaemic which makes daily simple tasks... Read More

I was told that the second surgery went very well, by the surgeon who performed... Read More

Where did I end in my last blog reflection? I think I was just coming... Read More

I firstly must say that I thank almighty God for my life, the struggles are... Read More

When I was constantly in hospital I used to hate when doctors would say things... Read More

This part of my journey will be written as a diary entry making it easier... Read More

More Awareness Needed When you have sickle cell you have to have a good doctor... Read More

So here I am again, on the way to recovery after what I can say... Read More

Sickle cell can cause emotional and physical distress. When I was in hospital weekly, my... Read More

Friday 25th October 2019 My Exchange blood transfusion So this morning I have met the... Read More

AliyasthoughtsSCD: You Are A Fighter To put it simply, sickle cell is a condition that... Read More

Thursday 24th October 2019 Arterial Line and a Traumatic Start This morning myself and husband... Read More

Monday 21st October 2019 Today I received a call from the sickle cell nurse informing... Read More

AliyasthoughtsSCD: Proof of Pain When you go to hospital you feel like you have to... Read More

My joint school appointment was at 9.30am on a bright and warm Wednesday morning at... Read More

Well here is another blog post with lots of positive flowing from it. It took... Read More

When I used to go to the hospital frequently, I would always feel anxious. There... Read More

I feel like quite a lot has happened since my last blog post and I... Read More

With sickle cell there are so many highs and lows, ups and downs, good days... Read More

I have been finding things pretty difficult from my last physio appointment as the exercises... Read More

When you leave school you have some sort of plan of what you want to... Read More

I hope everyone had a lovely Christmas, I would like to wish you all a... Read More

Well here I am again giving you an update on how I am doing and... Read More

Sam was being treated for malaria when he was first diagnosed with Sickle Cell disease... Read More

Depression depression depression it’s such an awkward thing to talk about it comes in all... Read More

I have been struggling recently to come to terms with the fact that I definitely... Read More

Once upon a time I would have classed myself as unfortunate, believing the way sickle... Read More

I recently completed my first solo trip abroad, across the oceans, to Japan. I visited... Read More

My story Let me firstly introduce myself to you all, My name is Laurel Brumant-Palmer,... Read More

Having sickle cell made me have to grow up very quickly, As a child and... Read More

Sickle cell doesn’t always effect people in the same way and when I hear others... Read More

Hey Guys, My name is Aliya I’m a beautician, brand ambassador and I also suffer... Read More

Kedu! Eti Sen? Hallo! Hey! I am a 20-something-year-old recent Law graduate, scaling the City... Read More

Hey everyone So up until recently I’ve been really excited and pleased to be living... Read More

Chantelle is a 23 year old woman who lives with sickle cell in Bradford and... Read More

Chantelle is a 23 year old woman who lives with sickle cell in Bradford and... Read More

After many years of being a DJ, Courtney is now working on disability rights, advocacy,... Read More

Name: Sanah Shaikh Age: 25 Job: Social Media Marketing Manager, and Entreprenuer How often do... Read More