Events | News | Uncategorised
Summer events
We have a number of workshops and feedback sessions over the summer months. The upcoming... Read More
End of year thanks to you all
Thank you from the Sickle Cell Society.
Give Blood for Sickle Cell Awareness Month
We’re supporting the NHS autumn campaign for people from black heritage communities to give blood... Read More
SCS response to European Medicines Agency (EMA) and Committee for Medicinal Products for Human Use (CHMP) updates on Crizanlizumab
This statement is an update to our previous statement on Crizanlizumab made on the 31/1/23.... Read More
CSL Vifor VIT-2763 Clinical Trial in SCD
Vision Serentiy are looking for Volunteers to join their Sickle Cell Study Research Programme of... Read More
Congratulations to our Patrons participating in the King’s Coronation!
The Sickle Cell Society are absolutely thrilled to have three of our amazing Patrons playing... Read More
Redress Study Launch Event – Saturday 20th May
The REDRESS Study Launch Event! “REDRESSing the balance of healthcare for patients with sickle cell”... Read More
It’s in our Genes
Here is the “It’s in our Genes” Service User Experiences and Feedback on the Communication of... Read More
Code Red Awareness Campaign Shortlisted in the PM Society Awards
We are happy to share that recently the disease awareness campaign Code Red (www.switchuponsickle.co.uk) was... Read More
This Valentine’s Did You Find Your Type?
By Iyamide Thomas, NHS Engagement Lead (Screening), Sickle Cell Society UK We celebrated Valentine’s Day... Read More
Living with Sickle Cell or Beta Thallasaemia Trait Leaflet
This leaflet gives a summary of research findings for Health and Social Care Professionals regarding... Read More
Rare Disease Day 2023
Today we’re recognising rare Disease Day, working towards equity in social opportunity, healthcare & access... Read More
SCS response to European Medicines Agency (EMA) and Novartis updates on Crizlanlizumab
As many of you will know Crizanlizumab (Adakveo) was recommended as a new disease modifying... Read More
Aliyah Gladying – Real Lives Blog
In my early twenties I was registered as disabled. This was during my constant hospital... Read More
DEFRA Podcast
Our NHS Engagement Lead, Iyamide Thomas recently took part in a comprehensive podcast for DEFRA,... Read More
PERICLES (Prenatal Therapy for Sickle Cell Disease)
The Sickle Cell Society is working with King’s College on a project looking at people’s... Read More
Do you or anyone you live with have Sickle Cell? Join us on Zoom for... Read More
News | Photos | Uncategorised
Her Majesty Queen Elizabeth II
All at the Sickle Cell Society are saddened to learn of the passing of Her... Read More
Sickle Cell Society’s response to Crizanlizumab (Adakveo), on an interim basis for use by NHS Scotland.
Sickle Cell Society’s response to the Scottish Medicines Consortium SMC Committee’s decision to accept Crizanlizumab... Read More
Have Your Voice Heard: Survey on Changes to Blood Donor Selection Rules
Have your voice heard: Take part in a survey on changes to blood donor selection... Read More
AGM 2021 – Documents (Agenda, Minutes and Annual Accounts)
This page provides the documents that will be used at the Sickle Cell Society’s 42nd... Read More
AGM 2020 Documents
If you are signed up to attend our 41st Annual General Meeting then please see... Read More
Footer Test
Footer Test
Peak District Challenge
Peak District Challenge … Walk, Jog, or Run it 4/5 July 2020 This challenge will... Read More
Prevention of red blood cell sickling in sickle cell disease [Research]
Dr Bridget Bax is conducting a laboratory-based pilot study at St George’s University of London... Read More
John James OBE
John James OBE has 33 years of experience within the NHS including 4 CEO roles.... Read More
Call for Reviewers!
The West Midlands Quality Review Service (WMQRS) and UK Forum on Haemoglobin Disorders are... Read More
