If you use Birmingham City Hospital, or Birmingham Women and Children’s Hospital for your sickle cell care, we really want your views. We are holding an online event on 14 May and invite you to take part. Registration links are below.

Along with the UK Thalassaemia Society are supporting the UK Forum for Haemoglobin Disorders Review Programme.

This means that we are collecting patient feedback on sickle cell services at different hospital locations, to feed into reviews of the service people receive. You can be frank with your views and we will provide a report at the end which does not identify the contributors.

A West Midlands review visit to City Hospital and Birmingham Children’s Hospital is taking place later in May. This is part of a plan to improve care for people with haemoglobin disorders/ Sickle Cell Disorder/ Thalassaemia and Rare Inherited Anaemias.

A team of patients, carers and healthcare professionals will look at the care offered by your local service and identify things that are working well and areas where improvements could be made.

Before the visit, we would like to hold an online meeting on Tuesday May 14th with patients and carers. The meeting will last about an hour. For the first 30 minutes we would like to meet with children, young people and their families and for the second 30 minutes with adults.

A representative from the Sickle Cell Society, user and carer reviewers will lead the meeting and a representative from the Midlands and Lancashire Commissioning Support Unit (who are facilitating the review programme) will also attend but only to provide support to the meeting and take notes.