NHSSCTP Year 5 Report
NHSSCTP Year 5 Report The Sickle Cell and Thalassaemia Screening Programme – Year five Annual... Read More
Sickle Cell Society 2022-2023 Impact Report
Download the PDF here : FINAL SCS IMPACT REPORT 2023
Red Cell Exchange – treatment information
Red Cell Exchange Following feedback from people living with sickle cell disorder, which made it... Read More
Summer Newsletter 2023
Summer Newsletter 2023 In this edition of our newsletter, find out how to join a... Read More
“It’s in our Genes”
18 April 2023 saw the launch of a new report ’It’s in Our Genes: Service... Read More
Anthony Nolan Sickle Cell and Stem Cell Transplant Information leaflet
The Sickle Cell Society are pleased to have worked with Anthony Nolan on their Sickle... Read More
NHSSCTP Year 4 Report
NHSSCTP Year 4 Report The Sickle Cell and Thalassaemia Screening Programme – Year Two Annual... Read More
Autumn Newsletter 2022
Autumn Newsletter 2022 In this edition of our newsletter, get an update from North Middx... Read More
Anthony Nolan Sickle Cell and Stem Cell Transplant Webpage
The Sickle Cell Society are pleased to have worked with Anthony Nolan on their Sickle... Read More
Impact Report 2021/2022
The 2021/22 Impact Report is a shorter and easier to read version of our Annual... Read More
Global Cure SCD 2021 Presentation
‘Global Cure SCD 2021 Presentation On Oct 2nd 2021,we spoke at the VUMC virtual conference... Read More
Spring Newsletter 2022
Spring Newsletter 2022 In this edition of our newsletter, get an update on the No... Read More
‘No One’s Listening Report’ Explained – An Inquiry Into Sickle Cell Care
‘No One’s Listening Report’ Explained – An Inquiry Into Sickle Cell Care On Monday 17th... Read More
Positive Action: How do you encourage others to advocate for change?
Positive Action: How do you encourage others to advocate for change? On 29th November, Give... Read More
Westminster Hall Debate
Treatment of Sickle Cell (Westminster Hall Debate) On Wednesday 8th December, the Rt Hon Pat... Read More
Write to Your MP (No One’s Listening Report)
Write to Your MP (No One’s Listening Report) On Monday 15th November 2021, the Sickle... Read More
Coronavirus and Sickle Cell Live Q&A – 5th November 2021
Coronavirus and Sickle Cell Live Q&A Friday 5th November 2021 Over a year on from... Read More
Sickle Cell and Thalassaemia Screening Poster
Sickle Cell and Thalassaemia Screening Poster A poster developed for the Sickle Cell and Thalassaemia... Read More
Emmanuel Amuta Poetry Award 2021 Winners
Emmanuel Amuta Poetry Award 2021 Winners The Sickle Cell Society’s Emmanuel Amuta Poetry Award is... Read More
Autumn Newsletter 2021
Autumn Newsletter 2021 In this Autumn edition of our newsletter, get an update on the... Read More
Sickle Cell Patient’s ‘Excruciating’ Wait for Pain Drugs: BBC South East
Sickle Cell Patient’s ‘Excruciating’ Wait for Pain Drugs: BBC South East Sickle cell patient, John... Read More
Impact Report 2020/21
The 2020/21 Impact Report is a shorter and easier to read version of our Annual... Read More
42nd Annual General Meeting 2021
42nd Annual General Meeting 2021 On Saturday 11th September 2021, we joined with our members... Read More
NHSSCTP Year 3 Report
NHSSCTP Year 3 Report The Sickle Cell and Thalassaemia Screening Programme – Year Two Annual... Read More
Turn up the Volume (Spoken Word Event)
Turn up the Volume (Spoken Word Event) On Friday 4th June the Sickle Cell Society’s... Read More
Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care
Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care This third edition of... Read More
APPG Hearing on access to medicines hearing
APPG Hearing on access to medicines hearing On Wednesday 28th April 2021 the All-Party Parliamentary... Read More
‘Your Voice’ on Yanga TV – A Tribute To Richard Okorogheye
Tribute To Richard Okorogheye (‘Your Voice’ on Yanga TV) Our NHS Engagement Lead, Iyamide Thomas,... Read More
Sickle Cell World Assessment Survey (SWAY) – A Discussion
Sickle Cell World Assessment Survey (SWAY) – A Discussion Watch an in depth discussion on... Read More
Spring Newsletter 2021
Spring Newsletter 2021 In this Spring edition of our newsletter, view our COVID-19 report, the... Read More
In Conversation with Professor Dame Elizabeth Anionwu
In Conversation with Professor Dame Elizabeth Anionwu Come and join us for a conversation around... Read More
Charity Walk for Sickle Cell
Charity Walk for Sickle Cell Willesden Walk for the Mayor of Brent’s Charities – Sickle... Read More
Sickle Cell Workout with @sicklefitkech
Sickle Cell Workout with @sicklefitkech The Sickle Cell Society’s Hackney Engagement Project have partnered with... Read More
BBC London: Sickle Cell and Rare Diseases
BBC London: Sickle Cell and Rare Diseases Lead Sickle Cell Mentor, June Okochi, speaks on... Read More
Getting the COVID-19 Vaccine: Sickle Cell Patient Stories
Getting the COVID-19 Vaccine: Sickle Cell Patient Stories We joined with Dr Rachel Kesse-Adu (consultant... Read More
Sickle Cell, COVID-19 & Vaccination (Presentation and Q&A)
Sickle Cell, COVID-19 & Vaccination (Presentation and Q&A) On Wednesday 27th January 2021 we joined... Read More
Learn about the COVID-19 Vaccine with Dr Anna Goodman
Learn about the COVID-19 Vaccine with Dr Anna Goodman We talked with Dr Anna Goodman,... Read More
Sickle Cell: The Global Perspective (World Sickle Cell Day Webinar)
Sickle Cell: The Global Perspective (World Sickle Cell Day Webinar) On Friday 19th June 2020,... Read More
Know Our Patients (KOP) Sickle Cell Personal Experiences
Know Our Patients (KOP) Sickle Cell Personal Experiences Listen to the personal sickle cell experiences... Read More
Autumn Newsletter 2020
Autumn Newsletter 2020 In this Autumn edition of our newsletter, see our letter to the Prime... Read More
Tell Your Story
Tell Your Story Over half term (31st October), the Our Journey, Our Story project conducted... Read More
Parent’s Panel 2 – Hackney Engagement Project
Parent’s Panel 2 – Hackney Engagement Project The third installment of the Hackney Engagement Project’s... Read More
Virtual Children’s Holiday 2020
Virtual Children’s Holiday 2020 On Friday 14th August to Sunday 16th August we hosted our... Read More
Layla and Suki – Blood Donors Save My Life (SCS & NHSBT)
Layla & Suki – Blood Donors Save My Life (SCS & NHSBT) Mum of one... Read More
Turn up the Volume on Blood Donation
‘Give Blood, Spread Love, England’ The Sickle Cell Society’s blood donation project is now registering... Read More
Men’s Panel – Hackney Engagement Project
Men’s Panel – Hackney Engagement Project The second of the Hackney Engagement Project’s sickle cell... Read More
Coronavirus and Sickle Cell Live Q&A – 11th September 2020
The Sickle Cell Society’s third Coronavirus (COVID-19) and Sickle Cell Live Q&A took place on:... Read More
Sickle Cell Society AGM 2020 (Virtual)
Sickle Cell Society AGM 2020 (Virtual) The 41st Annual General Meeting (AGM) of the Sickle... Read More
Impact Report 2019/20
2019/20 Impact Report The 2019/20 Impact Report is a shorter and easier to read version... Read More
Parent’s Panel – Hackney Engagement Project
Parent’s Panel – Hackney Engagement Project The first of the Hackney Engagement Project’s sickle cell... Read More
NHSSCTP Year 2 Report
NHSSCTP Year 2 Report The Sickle Cell and Thalassaemia Screening Programme – Year Two Annual... Read More
1ne – Episodes ft. J Auburn (Sickle Cell Song)
1ne – Episodes ft. J Auburn (S ickle Cell Song) 1ne (@SoulBrother1ne) is a... Read More
Coronavirus and Sickle Cell Live Q&A – 5th June 2020
The Sickle Cell Society’s second Coronavirus (COVID-19) and Sickle Cell Live Q&A took place on... Read More
Coronavirus and Sickle Cell Live Q&A – 15th May 2020
Coronavirus and Sickle Cell Live Q&A – 15th May 2020 The Sickle Cell Society’s first... Read More
Spring Newsletter 2020
Spring Newsletter 2020 In this Spring edition of our newsletter, see the highlights from the... Read More
Sickle Cell Children’s Holiday 2019
Sickle Cell Children’s Holiday 2019 Highlights from the 2019 Sickle Cell Society Annual Children’s Holiday.... Read More
Sickle Cell Work and Employment: Final Report
Barriers and Enablers to Employment: Black Disabled Peoples Living with Sickle Cell Disorder Project SUMMARY... Read More
NHSSCTP Year 1 Report
NHSSCTP Year 1 Report The Sickle Cell and Thalassaemia Screening Programme – Year One Annual... Read More
Findings from Sickle Cell World Assessment Survey (SWAY)
The Global Burden of Sickle Cell Disease: Findings from Sickle Cell World Assessment Survey (SWAY)... Read More
Professor Dame Elizabeth Anionwu at Mayor of Brent’s Festive Fundraiser
Professor Dame Elizabeth Anionwu at Mayor of Brent’s Festive Fundraiser Sickle Cell Society patron, Professor... Read More
The Path to Parliament
The Path to Parliament In June, Courteney spoke in Parliament about her experience of living... Read More
Portraits of Pain
Portraits of Pain Portraits of Pain is a short film by June Okochi exploring what... Read More
Mayor of Brent Donates Blood
Mayor of Brent Donates Blood 40,000 black blood donors needed to help save lives The... Read More
Global’s Make Some Noise // Sickle Cell Society on Capital FM Breakfast
Global’s Make Some Noise // Sickle Cell Society on Capital FM Breakfast Global’s Make Some... Read More
The Untold Stories of Sickle Cell – Teonna’s Story
The Untold Stories of Sickle Cell – Teonna’s Story Teonna is 27 years old. She... Read More
Miai on Capital FM
Miai on Capital FM A young girl named Miai shares her story about living with... Read More
Autumn Newsletter 2019
Autumn Newsletter In this special edition of our newsletter: 40 Highlights from 40 Years, End... Read More
The Untold Stories of Sickle Cell – Emmanuel
The Untold Stories of Sickle Cell – Emmanuel Emmanuel is 41 years old. He grew... Read More
Sickle Cell Work and Employment
Sickle Cell Work and Employment Sickle Cell Work and Employment – A Guide for Employers and... Read More
Impact Report 2018/19
2018/19 Impact Report The 2018/19 Impact Report is a shorter and easier to read version... Read More
Omega Live TV Interview
Our NHS Engagement lead, Iyamide Thomas, in the Omega Live TV studio to discuss sickle... Read More
A Parent’s Guide to Managing Sickle Cell Disease
If you are told your child has sickle cell disease you will probably have lots... Read More
Spring Newsletter 2019
In our Spring edition newsletter you can read about the Sickle Cell Society’s 40th Anniversary,... Read More
What is Sickle Cell Disease?
What is Sickle Cell Disease? Click here to download the full booklet
Le SavaisTu? Âges 5-10
Le SavaisTu? Âges 5-10 Download here
Le Savais-Tu? Ages 11-16
Le Savais-Tu? Ages 11-16 Download here
Distúrbio da célula falciforme e Portador da célula falciforme
Distúrbio da célula falciforme e Portador da célula falciforme Download here
La Drépanocytose et Le Trait drépanocytaire
La Drépanocytose et Le Trait drépanocytaire Download here
Vamos falar sobre Célula falciforme
Vamos falar sobre Célula falciforme Download here