Did You Know Age 11-16: an information booklet for young people

Did You Know Age 11-16 is a booklet for young people aged 11-16 explaining sickle cell. It is suitable for young people living with the disorder, their siblings, and raising awareness to young people. It explains what sickle cell is, possible complications and treatments, as well as tips for self care, in a way that is tailored to young people of this age.

Download a copy of Did You Know Age 11-16

To order print copies of this 12 page booklet, please email info@sicklecellsociety.org. Please note you will be required to pay for post and packaging.

Quiz Answers

1. Hb is short for haemoglobin: TRUE

2. Haemoglobin is a protein found in red blood cells: TRUE

3. Everyone inherits two haemoglobin genes, one from mum and one from dad: TRUE- if you have sickle cell, you inherited a gene for sickle haemoglobin from both parents.

4. In sickle cell disorders shortage of oxygen can turn red blood cells into a sickle shape: TRUE

5. It is good to be active: TRUE- but know your limits!

7. It is helpful to ask questions: TRUE- always! If you have any questions, please contact us!

References

NICE Clinical Knowledge Summaries. Sickle cell disease. November 2010. Accessed August 2014.
NHS Sickle cell and Thalassaemia Screening programme. What is Sickle cell disease? Copyright 2013. Accessed August 2014.
US National Institute of Health. Genetics Home Reference. Your guide to understanding Genetic conditions. What is a cell? Accessed 03 09 2014 http://ghr.nlm.nih.gov/handbook/basics/cell
NHS Choices. Red blood count. Accessed 03 09 2014 http://www.nhs.uk/Pages/Preview.aspx?site=Red-blood-count&print=635453391987851810&JScript=1
NHS Bblood and Ttransplant. Haemoglobin and Iron – Information for donors. Accesses 03 09 2014 http://www.blood.co.uk/resources/leaflets/haemoglobin-and-iron/
NHS Choices. Bone marrow donation. Accessed 03 09 2014.
Patient UK- Sickle cell disease and Sickle cell anaemia. Accessed 22 08 2014.
NHS Choices – SC Anaemia. Accessed 22 08 2014.
NHS Sickle cell and Thalassaemia. Treatment and care for sickle cell disease. Accessed 08 09 2014.
Patient UK – Anaemia. Accessed 08 09 2014.
National Heart, Lung and Blood Institute. What is Sickle cell anaemia? Accessed 22 08 2014.
NICE clinical guideline 111. Nocturnal enuresis. The management of bedwetting in children and young people. Issued: October 2010.Accessed 08 09 2014.
NHS Screening Programme, Sickle Cell and Thalassaemia. Sickle Cell Disease in Childhood. Standard and Guidelines for Clinical care. Edition 2, October 2010. National Heart, Lung and Blood Institute. What is Sickle cell anaemia?
NICE Guidance – Enuresis
European association of Urology. Guidelines 15_Priapism. accessed Sept 2014
NHS Screening Programme, Sickle Cell and Thalassaemia. Sickle Cell Disease in Childhood. Standard and Guidelines for Clinical care. Edition 2, October 2010.European association of Urology. Guidelines 15 Priapism. Accessed Sept 2014.
Centre for Disease Control. Sickle cell disease, Complications and treatments. Accessed 12 09 2014.15. NHS Choices. Vitamins and minerals. Accessed 14 11 2014. – Vitamins.
British National Formula for Children. Medicines complete. Sickle cell disease. nutrition and blood. Accessed 14 11 2014.