Support Groups
This page provides contact information on support groups, local services and NHS Sickle Cell and Thalassaemia Centres across the UK.
Sickle Cell and Thalassaemia Centres and Services
We have collected together a list of sickle cell and thalassaemia centres and services across the UK. Click here or on the image to download the PDF. The list contains:
- Centres in Greater London
- Centres outside London
- Patient Support Groups and Voluntary Organisations
- Other useful Contacts
This list is an excerpt from ‘A Parent’s Guide to Managing Sickle Cell Disease’ (4th Edition 2021). The full document can be found here: www.sicklecellsociety.org/publicationlaunch/
More information on the sickle cell and thalassaemia services can be found at the STANMAP (Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals) website: https://stanmap.org.uk/
Haemoglobinopathies Coordinating Centres (HCCs)
HCCs are responsible for coordinating, supporting and promoting a system-wide networked approach to the delivery of haemoglobinopathy services. HCCs aim to support hospitals in their area who have less expertise in these conditions, to make sure all patients have access to specialist advice when needed. This will involve offering training and advice to less experienced hospitals.
Below is the full list of Sickle Cell Disease Haemoglobinopathies Coordinating Centres (HCCs):
- North West: Manchester University NHS Foundation Trust
- North East and Yorkshire: Sheffield Teaching Hospitals NHS Foundation Trust
- East Midlands: University Hospitals of Leicester NHS Trust
- West Midlands: Contract currently being finalised with Trust – check back for updates
- East London and Essex: Barts Health NHS Trust
- South East London and South East: King’s College Hospital NHS Foundation Trust
- West London: Imperial College Healthcare NHS Trust
- North Central London and East Anglia: University College London Hospitals NHS Foundation Trust
- Wessex and Thames Valley: Oxford University Hospitals NHS Foundation Trust
- South West: University Hospitals Bristol NHS Foundation Trust
You can see the full list of HCCs including sickle cell and thalassaemia, the National Haemoglobinopathy Panel (NHP), and Specialist Haemoglobinopathies Teams (SHTs) here: Specialised Haemoglobinopathy Services
Support Groups
Support groups play a vital part in delivering care for people living with sickle cell and their families. We have created this list so that you can find a support group close to you. Support groups operate independently from the Sickle Cell Society. The list is organised by area:
The North – The Midlands – London – The South – Wales – Scotland
If you run one of these support groups and have noticed that some of the information is incorrect then please email matthew.neal@sicklecellsociety.org with the subject: Support Group. At the bottom of this page there is also a small section on other services.
The North
The Midlands
London
The South
Wales
Scotland
Other Services
For local services download a list here.
